So, what am I not caught up on (the list is long..haha). Updates: August 21, 2015: My Birthday. Birthday's are quite different once you become a Mom. Last year was spent in the NBICU. This year pregnant and with two 1 year olds scooting around like crazy. I told Andy next year for my 30...something Birthday (J/K... My 35 bday. You are only as old as you feel) I am having a huge Birthday Bash. We didn't do a whole lot for my Birthday. Andy did get me a beautiful charm for my bracelet from him and Z&Z. We wanted to hang out as a family so going out for dinner left us few options. We chose Buffalo Wild Wings as it is loud in there and the twins are distracted and can make noise. Overall is was a great day. I can't forget either that August 20, 2015 was our 4 year anniversary also. We spent our Anniversary up in Big Sky at Music in the Mountains. Maybe... As I was just talking to Andy neither of us remember what we did for our Anniversary. It may have been to smokey to go to Big Sky... So, on second thought. I think we went to eat somewhere. And this is why I do this blog.
August 24, 2015: Zayne had his f/u appt. in Billings with his pulmonolgist. He did a room air trial with Zayne- Meaning he took him off his oxygen for about 20-30 minutes. Zayne was able to maintain his oxygen saturation between 90-93%. This is great. Although this Dr. would like to keep him greater than 94% because he continues to be high risk for pulmonary hypertension. He took a listen to his lungs, We asked him how he feels about Zayne. He said Respiratory wise Zayne is doing great weight wise, his weight sucks (I think were his exact words). We are able to wean down Zayne on his oxygen during the days again and keep him where he is at during the night. They drew some labs on Zayne and also took a chest xray. His Dr's nurse called us the next day to tell us that Zayne's xray "looked wonderful." The both the radiologist and the Dr were pleased and impressed. They also did not see any scarring of cystic lesions on his lungs either. (If he had a scope done like he did before they would probably see more) but for now this is great news and we will take it. The Dr. plans to continue to wean Zayne very slow. He is very insistent (so are we and every other Doctor that he sees) that Zayne gets the synergis injection which helps to protect him from RSV again. They continue to tell us and we are well aware that it is absolutely crucial for Zayne to not get RSV. So we are praying hard that he will qualify and be given the extra protection.
August 25, 2015: We did Z&Z one year pics and a few maternity photos and family photos. Andy was not at all stoked to do these. I will never understand why guys don't understand the importance of photos. We chose to do them at a later time. 6pm. The twins did great. They actually both smiled for a few. I think it was more difficult to get Andy to participate that them. I am so glad we got them done and in my opinion it is worth every dollar I spent as I will for ever cherish them. Zayne is such a Ham. He loves the camera. The photographer was joking that people are going to be calling him up to use as a model.
August 27, 2015: Today I had a f/u ultrasound for Baby C. We continue to learn what we already know. That baby C appears to be on the smaller side. Fluid is good, cord is good, and as far as they can tell everything else looks great. We will continue to watch the growth, being the baby is in the 7% the worry is that the growth will continue to slow or stop. After all we have been through this brings little worry to me. I know that this is a risk factor of back to back pregnancy. I also am assure by the U/S and by my Doctors that as of right now things look good. Small but good.
September 7, 2015: We took a trip to West Yellowstone to finally go eat at my best friend Misty's restaurant. Also it was important to me to spend some quality time with these two before Baby C. Although it always seem hectic and like there is never enough time, it was great to take a drive down there. We went for a small little hike, and took some pictures with them. It was really important to me to get some pics and get some one on one time with them before life as we know it changes.
Update on Z&Z: We recently changed Zayne's diet. It's been changed for about a month. We took it into our own hands and I have done research on doing a blended diet. We hit a wall with his g tube feedings and were really getting no where in the progress that he was making. We started the blended diet. We went slow starting with a Avocado, then a Banana, and slowly kept adding. There are not many Doctors or dietitians out there that support us. But we went for it and we are not going back. Zayne is like a new kid. He has so much energy, and as if he couldn't get happier he is. He is a happy little guy (although he is fully capable of having a wicked bad temper) He just looks better. AND... He has not spit up once since we started the blenderized diet. He is doing so so well with it. We recently were able to get a vitamix which should help in making his meals even easier. We are so pleased with the results that we are seeing.
They both are busy busy. They are on the go and into everything. Neither one is walking yet, but we are okay with that. Zoe is about 19# 4oz. and Zayne is about 18# 4oz. I had Zayne in again to have his ears checked. He still has some fluid in them but we are hoping he is able to fight off this last ear infection. They did talk tubes. But, Andy and I are going to do everything in our power to avoid the tubes. He is going to see a chiropractor, use some essential oils, and some garlic oil. Call us crazy but we have heard great results of it and this is our beliefs.
September 13, 2015: This is not at all how I wanted these last blog posts to go. I may have to edit and add the pictures later. Again, not enough time. But here it is the night before the C/S and the OCD in me or whatever you would like to call it won't be happy until this is checked off the list. Maybe not complete but it's checked off. I can not tell you the many tears I have had leading up to this day. The emotions are wild. Call it pregnancy, call it hormones, being a girl, or just being a MOM. I wish I had more time with just the twins. I am worried to leave them as I have never left them before. I don't trust a lot of people with them (I have and will continue to only leave them with people who have a medical back ground, for Zayne's sake.). And maybe it's not even a trust issue, more that I know Andy and I do the very best with them and no one can replace that. And it is important to me that people do things how we want them vs. how they want too or what they think is best for them. It drives me crazy. We know what is best for them, whether any one else agrees or not. I cry thinking of the last rock of just Z&Z, the last bath of just the two of them, the last nap time with just them, etc. It's so crazy what you feel and go through. But, as a Mom I know you find the time for each of them. I know that this little surprise is truly a blessing from above and that the love we feel now is going to triple tomorrow morning. But, it's still hard. And just as I told myself with Z&Z during the NBICU and the biggest hurdle of our life. "We got this." "Go Z team." And "always be the Buffalo."
**Pictures Coming Soon**
No comments :
Post a Comment